Promise me you'll always remember: You're braver than you believe, stronger than you seem, and smarter than you think. Christopher Robin

Wednesday, April 11, 2012

Bilateral True Vocal Paralysis April 2010

Blake at 9 months.

Blake has been diagnosed with a condition called Bilateral True Vocal Paralysis. Other cases seem to be linked to people that have other medical conditions. They did a scan on his brain and said everything was fine up there. Healthy vocal cords open up so that air can pass through the trachea. Both of his cords are paralyzed leaving him a constricted opening for breathing. They are planned to do a one hour surgery today (if he is healthy enough) to try to see what exactly is going on in there. I have only been told two options to try to make things better. Option one, which they may do today, is to inject one of his vocal cords with Botox. I guess that it will cause the cord to move and open up his airway. The worst case scenario would be that they would have to put in a trachea tube. He would have to have that for two years. That would require a lot of care. I have no idea if it is something that he will grow out of etc. I do know that it does not stop him from being able to speak etc. They are with the best of the best Dr. but he still only sees about two of these cases a year. The surgery will be done at primary children’s and they will keep him in ICU for a couple days after. Please keep the Smiths in your prayers.


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