Botox injection April 5, 2010



Blake is in recovery. Well, he is probably out by now and with his mom and dad in the ICU. They didn't find anything new, but they did go ahead with the Botox injection. They have to wait to see if it had any affect. He will be in ICU for 24 hours and have a 1 on 1 nurse the whole time. He will have a breathing tube down his nose. We still have no idea how long he will have to stay in there. He could be released as early as tomorrow.

I guess it is a wait and see thing now. Tomorrow they will take the breathing tube out and they should be able to see if the Botox is doing it's job. It is tough to see the little guy hooked up to all those tubes and cords.





Blake had a good night. They are slowly turning down his O2 and he seems to be doing well with that. The nurse seemed very optimistic about his recovery progress. Becky and Chad were just heading up the elevator a little after 8 this morning. They can't use their phones when they are in ICU so I am not sure when we will get another update. Sometime today they are planning on taking the tube out and then they will be able to see how the Botox is working. Mom said that the nurses usually do that, but the Dr. wanted to be there for it.

The medical staff could not believe that Blake had been living this long with the condition. They were really appalled that he had been released from Primary Children's six weeks ago without seeing the specialist. They said that he was a ticking time bomb... Just another case of medical failures. I know that we have the best medicine around and am so grateful for the miracles they have preformed on me and my family. This is just a reminder that you have to look out for your own, ask questions, be demanding, write things down, research on your own, and follow-up!

-- I just got a call from Becky. The Dr. is in the room right now with Chad and they are taking the tube out. The Dr. is very optimistic, and seems to be very well regarded around the area. They really liked the anaesthesiologist as well. It could be another day or so to know for sure how the Botox is doing, but it seems like it is going well. He was breathing around the tube which was a good sign because he was able to have enough room around the tube that he could get air. The next thing will be figuring out how the best way will be to feed him.